| Alastair Kent |
United Kingdom |
|
Genetic Alliance UK |
| Ysbrand Poortman |
The Netherlands |
|
Dutch Alliance Parent & Patient org. (VSOP) |
| Sharon Terry |
North America |
|
Genetic Alliance (AGA) |
| Ihor Bariliak |
Ukraine |
|
Ukrainian Alliance for the Prevention of Birth Defects |
| Michael Livingston |
United Kingdom |
|
HEART EU, Patient Network |
| John Forman |
New Zealand |
|
New Zealand Organisation for Genetic Disorders |
| Darius Farhud |
Iran |
|
Iranian Alliance of Parent/Patient Organisations |
| Jai Rup Singh |
India |
|
Indian Alliance of Parent/patient org |
| Arnold Christianson |
South Africa |
|
Southern African Inherited Disorders Association |
| Martha Carvalho |
Brazil |
|
Brazilian Genetic Alliance |
| Brian O Mahony |
Ireland |
|
International Haemophilia Consortium |
