About us

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Board

Dianne Petrie

Australia

Association of Genetic Support Groups of Australasia (AGSA)

Alastair Kent

United Kingdom

Genetic Interest Group (GIG) and European Genetic Alliances’ Network (EGAN)

Sharon Terry

USA & Canada

Genetic Alliance (GA) 

Wladimir Wertelecki

Ukraine

Ukrainian Alliance for Prevention of Birth Defects

Michael Livingston

United Kingdom

HEART EU, Patient Network

John Forman

New Zealand

New Zealand Organisation for Genetic Disorders

Jai Rup Singh

India

Indian Alliance of Parent/Patient Organisations

Jo-Anne Richards

South Africa

Southern African Inherited Disorders Association 

Martha Carvalho 

Brazil

Brazilian Genetic Alliance

Brian O Mahony

Ireland

World Haemophilia Federation

Irma Nippert

Germany

World Alliance Organizations for Prevention & Treatment of Genetic & Congenital Conditions 

Executive Committee

President (acting) Dianne Petrie (Australasia)

Secretary General Alastair Kent (Europe) 

Treasurer (acting) Rod Mitchell (Europe)

Members

Sharon Terry (United States & Canada)

Jo-anne Richards (Middle & South Africa) 

Martha Carvalho (Brazil)

 

Website: Websteen