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Frequently asked questions

Q: What is determined by a genetic disease?

A: Any disease with a genetic component.  

Q: Why does IGA focus on genetic disease and acquired birth defects?

A: Genetics and biotechnology offer a great potential for prevention and effective treatment for diseases. IGA considers it of outstanding importance that these new tools are rightly, timely and adequately used to alleviate the burden of disease.

Moreover via genetic testing early, even pre symptomatic, and accurate diagnosis is possible. These technologies enable people to take diseases in time on family planning, early treatment and life style issues. 

Q: Where can I find information about my disease?

A: Your physician is the responsible person and he could provide the relevant information or refer you, if necessary, to a specialised centre. There may be a patient organisations for your disease in your country which usually has much relevant information and adequate advise.If this fails you may contact the genetic or rare disease alliance in your country.

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